An amazing Thanksgiving is a memory and we soldier on… My nephew (via LA), his mom (who drove from Oak Ridge, TN) and my partner and I met in Asheville, NC for the long holiday weekend. Photos first…stories later :). Christine
Photography, seeking, writing…and learning along the way. Want to come along?!
An amazing Thanksgiving is a memory and we soldier on… My nephew (via LA), his mom (who drove from Oak Ridge, TN) and my partner and I met in Asheville, NC for the long holiday weekend. Photos first…stories later :). Christine
No doubt many of you have seen the efforts of Mashable to spread the word about Miles, the little boy with leukemia, who’s express desire to the Make-A-Wish Foundation was to be Batkid for a day. This morning I saw, to my absolute delight, the MOVIE TRAILER, made by YouTube user SandD2012…
Where there may be darkness, shine light- and hope!
http://mashable.com/2013/11/22/batkid-rises/?utm_cid=mash-com-fb-main-link
A few pictures and then some words:
For the last year I have been on a journey to figure out my “creative self”.
I know I love to work with, and photograph, kids. I also feel really good supporting the work of local organizations and I would do just about anything for free. This is where things start to fall apart. I have not had success finding meaningful work- that pays. I have decided it is time to set aside dreamy notions and get practical. Perhaps it is time to rethink everything…Hopefully, I will be back soon with a happy update. All my best, Christine
There are many ways to consider “layers”.
The beauty of the photography by fellow blogger, ‘A Remark You Made’, made me think about a young man I know who wanted to be photographed wearing angel wings. His life is a tangle of layers; adoption, sexual identity, self-expression, culture…
Layers by a Remark You Made:
My mother wore Chanel No 5 all her life. I recall, as a kid, wondering why anyone would splash on toilet water! Gross! I could never figure out how something that smelled so lovely had such a dumb name.
Yesterday, while looking for something to wear to yet another job interview, I was inexplicably drawn to the Chanel counter. Near the bottom of the polished glass case were the bottles of No 5 Eau de Toilette. The young woman staffing the display took some out and spritzed a sample card. I immediately teared up! Mother might just as well have been standing beside me.
She and I were best buds when I was small; lunches out at Sibley’s or McCurdy’s department stores in downtown Rochester, NY (we always had chicken salad on white bread, crusts trimmed with a (shared) cheesecake chaser). At Christmas there was breakfast with Santa. Yes, I am a child of the fifties.
And so, standing at the Chanel counter, I bought a little bottle of Chanel No 5, sprayed a tiny bit close to my heart this morning and thought of another whom I love, my brother Mark, who would be 67 today! Though not here in the flesh, he is with us is so many, many ways. Be sure to look for a rambly, photo-filled blog after Thnksgiving. We will be spending it with Mark’s widow and my nephew in Asheville, NC!
This morning’s obituary section listed a gentleman with whom I am acquainted. At 52, his career accomplishments are impressive. A loving family is left with memories of a talented, devoted father and husband. He died, of course, too young.
What the article does not mention is that he was a childhood cancer survivor. There are hundreds of thousands around the world. Brave people, many now well beyond their twenties who underwent treatment for leukemia, Hodgkin’s, brain tumors, and other malignancies. For some, the treatment was in its infancy.
A pioneering group of researchers at the University of Minnesota recognized the challenges and pitfalls inherent in the treatment of these young patients. In tandem with other standouts in the field of oncology, Dr. Ann Mertens, Les Robison, PhD, and Pediatric Oncologist, Dr. Joseph Neglia, launched a cohort study of 20,000 childhood cancer survivors (The Childhood Cancer Survivor Study). The research on individuals treated between 1970 and 1986 would, in effect, change the face of treatment as we know it today.
Combining forces with venerable institutions around the country and in Canada, a detailed, longitudinal process commenced that would look at the late effects of the radiation and chemotherapy used to treat childhood malignancies. As survival rates improved, so did the unintended consequence –adverse events such as cardiac complications, breast cancers, and second cancers.
Today, the key players are scattered. Dr. Les Robison is Chair, Department of Epidemiology and Cancer Control at St. Jude’s in Memphis where the CCSS is now based; Dr. Ann Mertens is on the research faculty at Emory in Atlanta, and Dr. Joseph Neglia is Physician in Chief at Amplatz Children’s Hospital in Minneapolis, MN. All three remain committed to research leading to positive outcomes for children, ‘beyond the cure’.
For information on support and resources for Childhood Cancer Survivors, click here:
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